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Telephone Number:  07702493001

Help Line  07702493001

Support

07702493001

Cath Mullins

northstaffordshiresupport@mssociety.org.uk


Cath Mullins is our Support Lead  we are very pleased

that she has taken on this difficult but rewarding post, she writes

We are here to support anybody affected by MS, including their families/carers.

 Everything you tell us is confidential within the support team.


You may wish to contact us about any issue (example: finances, benefits, symptoms, problems with health care professionals….).

We also offer emotional support, so if you simply need to talk and explore your feelings, the team could also assist. However, we cannot and will not tell you what to do; we offer suggestions and help you find solutions as to what the best course of action may be.

The help and support we give you could be simply a listening ear, but it could include signposting you to another service or agency that has the knowledge to deal with more complicated matters.


• Therefore, you can phone the Group HELPLINE on 07702 493001 which will be picked up by a member of the team.

Please leave a message and a member of the team will be back in touch with you.  

However, if you wish to have a more anonymous chat you can phone our National Helpline

 on Freephone number 0808 800 8000 (9am - 9pm Mon - Fri) except Bank Holidays.

CAB - the branch pay for a CAB advisor. This reduces the waiting time, etc. Please contact the team if you require this service.


• VISITS – we aim to visit people in their homes or in hospital, where possible. Unfortunately we all have MS ourselves and sometimes this is difficult to do. Also, unless we are informed we are not always aware if you have been admitted to hospital. So if you require contact get in touch.

Please remember we are volunteers with MS, we do our best and we cannot be perfect and we know there is always more that can be done!



CANCELLATION OF HOSPITAL APPOINTMENTS


Just a quick note for everyone’s information. If you have to cancel a hospital appointment,

especially with the MS Nurses, and you use the automated service to cancel the appointment (i.e. when the hospital automatically rings you and you are required to press one number to cancel your appointment). Unfortunately the fact that you have cancelled does not get passed to the MS Nurses, Doctor or Consultant and they are still expecting you in clinic.

Please ring the departments number which appears on your appointment letter and this will get through to the member of staff you are due to see.

The MS Nurses office contact details: 01782 679462 or email them on:

multiplesclerosisnurses@uhns.nhs.uk

If you follow this procedure then cancelled appointments can be reused.

Many thanks. Karen Boulton


Meet some of the team!!!


“Hi I am Terri Abbott and I am joining the support team. I have lived in Cheadle for 26 years with my husband Steve, we have one lovely son Andy who is 25 and currently still living at home.  I was diagnosed with MS around 23 years ago, I am still mobile around the house and really enjoy getting out to MS Mondays.  I have an electric scooter which gets me to and from local shops, so I still have a little bit of independence.  Although my MS prevents me from doing many day to day things that many people take for granted, it is important to keep positive.”

“Hi my name is Shirley Smith, I am, married to Stuart for 37 years and have 2 grown up children and hopefully by the time you read this I should have become a grandmother for the first time.

 I was diagnosed with MS in 2001, I joined the society immediately and the support I have received has been a tremendous help to me, also we have the MS Monday group and Yoga.  I must thank the team of dedicated team of volunteers who run these each week.

I have been on the welfare support team for 3 years now and I hope to continue to put something back to the society by helping others.”

At local level we are your first contact for advice or a sympathetic ear below is what we hope to achieve for people affected with MS at a national level.

northstaffordshirems@outlook.com

The Multiple Sclerosis Society

The Multiple Sclerosis Society is dedicated to supporting people with MS and securing the care they need in their everyday lives.  It is also a major UK funder of biomedical research into MS.


Care and Support

The Society's services are as diverse as the complexity of the disease, embracing respite and day care, physical therapies, financial support, counselling, advocacy and campaigning, training and, above all, information.  Thousands of enquiries are handled every month by the Society's telephone helpline and information services.  Its trained staff have access to one of the most comprehensive MS information databases and libraries anywhere in the world.

A nationwide network of more than 370 Society branches run by volunteers offers readily accessible practical assistance with home aids and adaptations, mobility and other services and advice.  They hold regular social functions and meetings where members can share common problems.  Special attention is given to advising and supporting those who have been recently diagnosed with MS.

There are eight Society-funded respite care centres and holiday homes.  The respite centres provide high standards of professional care in comfortable and attractive surroundings for people with MS, allowing families and carers their own much-needed break from an often demanding routine.

The Society has undertaken social research into the needs and priorities of people affected by MS, including work on the delivery of services.  Many people still believe they are being told at diagnosis simply to get on with their lives.  Yet the reality is that a great deal of help can be given to relieve symptoms ranging from severe fatigue and incontinence through sensory and motor loss to pain, spasm and sexual problems.

With this in mind, the Society has produced standards of healthcare in MS, drawn up in collaboration with the National Hospital for Neurology, designed to help professionals who work with people with MS, their families and carers to identify their needs for high quality and equally available services.  To turn them into practice, it has launched a Measuring Success' programme which encourages multidisciplinary teams to be assessed against the standards.

Research

The MS Society is currently supporting over 60 biomedical research programmes in universities and hospitals.  More than £46 million has been committed in the past 20 years in areas including immunology, virology, glial biology and genetics.                                                        

 Current forward commitment is in excess of £8 million.


One of the most significant developments in recent years has been the use of magnetic resonance imaging to scan the brain and spinal cord.  This is a technique which can monitor the progress of MS and help to develop new approaches to therapy.  The Society continues to fund the expanding work of the first MRI research unit devoted entirely to MS, which it was responsible for setting up at the Institute of Neurology in London.

It also funded a £2 million inter-disciplinary research unit at the Brain Repair Centre in Cambridge.  Work there is initially concentrating on one of the most challenging and promising areas of MS research: limiting and repairing the damage caused to the brain and spinal cord.

The Society is developing a programme to apply the resources of science to the day to day problems of living with MS.  Research has already been funded on treating symptoms such as tremor, incontinence and cognitive problems, along with trials of drugs and other interventions.


The Multiple Sclerosis Society

The UK headquarters of The Multiple Sclerosis Society are at

MS Society

MS National Centre, 372 Edgware Road

London,  NW2 6NDTel: 020 8438 0700

Helpline: Freephone 0808 800 8000 (9am - 9pm Monday to Friday).

e-mail: info@mssociety.org.uk


If you need help with ESA forms or advice on PIP please visit here

dwpexamination.org

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Group Administration Co-ordinator

Christine Green

33 Marychurch Road, Bucknall, Stoke On Trent,  

ST2 9BJ       01782 284123

 northstaffordshire@mssociety.org.uk

http://www.mssociety.org.uk/